PatientsLikeMe Parkinson’s Disease Study FAQ

What is this study about?

In this study, our goal is to understand the patient journey and treatment experience of those living with Parkinson’s disease-related hallucinations and/or delusions, from diagnosis through starting treatment. We want to learn more about how treatment has affected symptoms and everyday life, and what matters to both patients and caregivers when it comes to continuing a treatment.

Is the survey confidential? 

Participation in the study is voluntary. Your answers to the questions will be kept confidential and combined with the answers of other participants prior to being reported. If you choose to participate, your personal information will never be used in any report or publication.

Who can participate? 

Patients experiencing Parkinson’s disease-related hallucinations and/or delusions and their caregivers or spouses.

How long does the survey take? 

The survey will take approximately 30 minutes to complete.

Who can I contact with questions about this study?

If you have any questions regarding this study, please feel free to contact us at researchstudy004@patientslikeme.com 

Is there compensation for the study? 

Your time and perspective are valuable to us. As a thank you for participating and sharing your experience, eligible participants who complete the survey will receive $50. 

See if you qualify

When completing the survey, how do I upload a photo? 

*Please make sure the prescription label is clearly visible and easy to read in the photo.

Option 1: Take a New Photo Using Your Phone or iPad

1. Select “Upload now” 
2. Select “Take Photo” or “Camera.”
3. Place the prescription pill bottle on a flat, well-lit surface with the prescription label facing the camera.
4. Take a clear photo and check that the information on the label is readable.
5. Select “Use Photo,” “Done,” or “Upload” to attach the photo to the survey.

Option 2: Upload a Photo You Already Have

Select “Upload now”

Then, pick “Select a file” 

From there:

1. Find and select the photo of your prescription pill bottle.
2. Check that the prescription label is clearly visible and readable.
3. Click ‘Open’ and this will upload the picture

Before continuing: Please confirm that you can clearly see and read the prescription label in the photo you uploaded. If the image is blurry or difficult to read, please take or select another photo.