Our research includes surveys, developing patient-reported outcome (PRO) surveys, polls, multi-step surveys, and projects using other sources of data such as wearables. We can also do research on the data patients track over time (longitudinal studies).
Our research can be funded in different ways - client (commercial), grant-funded, or internal research projects. Client work is typically with pharmaceutical companies and involves using our existing data as well as collecting new data through surveys to help clients make decisions and learn more about conditions experienced by our patients. A typical study might involve looking at the impact of a particular symptom (e.g., insomnia) in a given population (e.g., Parkinson’s disease). Grant-funded work takes place with collaborators at universities and academic medical centers who have written us into a grant as a subcontractor to collaborate in studies, sitting on advisory or steering committees, analyzing our databases, or conducting surveys. Internally, our team may choose to conduct their own research based on patient interests, personal interests, or with a view to improving and expanding the site.
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