Learn More About Health Data Privacy

At PatientsLikeMe, we are committed to ensuring your privacy and keeping you informed of our policies. We will review a few key terms from the Privacy Policy below to help you better understand how your information is used and kept private:

What is Personally Identifiable Information (PII)? 

Personally Identifiable Information is information that can be used to distinguish or trace an individual’s identity, either alone or when combined with other information that is linked or linkable to a specific individual.

What is considered PII on the PLM platform? 

The data you track in My Health; Your name; All contact information listed in your account settings or volunteered to PLM for promotions; Geolocation and IP data; Private messages. Please review the Privacy Policy for full details on Identifying data. 

What is not considered PII on the PLM platform? 

Posts in the social spaces on PLM including the home page, community group discussions and resources. 

How can I avoid sharing PII in the community? 

There are a few steps you can take to avoid sharing PII in the community and control the information shared from your account. 

• Head to your account settings to review your privacy preferences. 
• Review past posts on your profile by going to the About Me page, then click “View my Profile.” 
• You can avoid sharing PII in the community by keeping any contact information and personal details private. Follow our Posting Tips to safely and successfully make connections in the PLM community. 

What is the Consumer Health Data Privacy Policy?

The Consumer Health Data Privacy Policy  supplements the PatientsLikeMe Privacy Policy. To provide the products, services or features offered by PatientsLikeMe, we collect and process information about you, including information that could be considered Consumer Health Data. The information we collect depends on how you interact with us and use our Offerings, as described further in the "How Data is Used and Shared" section of our Privacy Policy.

You can dive deeper into the Consumer Health Data Privacy Policy here.

Who can I direct additional questions to?

If you have questions or need assistance, please reach out to our team here. Thank you for being a valued member of the PatientsLikeMe community. We understand that your privacy is important, and we take the trust you have placed in us to safeguard your data extremely seriously.