PatientsLikeMe is an open network that was designed to enable you to share information with other patients. It is important to remember that anybody can join, and that this is the internet, so you really don’t know who anybody is. So, while you may form strong relationships with other PatientsLikeMe members, be thoughtful about what you post.
1. Never share your email address in the forums, newsfeed or other text areas of the site. We provide a Private Messaging service to give you a way to safely communicate with other patients without revealing your email address.
2. Also, avoid sharing your real name, physical address, phone numbers, or any other personally identifying information. You don’t know who is reading posts now, or who might read them in the future.
3. If you see another member making this mistake, gently warn them of the dangers and advise them to edit their post, or reach out to a community moderator to help guide them on what kinds of information they should and shouldn't post.
4. If somebody asks you for your private information, notify a community moderator immediately.