How can I CONNECT with other patients like me? 

As you continue your health journey, you’ll find it helpful to seek support from the community, as well as offer support and guidance for others. We are committed to providing a safe space for members to share their stories, which you can learn more about in the Community Guidelines.   

In addition to the HOME page, you can use the CONNECT menu to get involved in community discussions or reach out to other members directly via private message.

Here you’ll see the option to browse and search members or head to the forums that you have automatically been added to or have recently joined. If you are a part of a private community group, you’ll see shortcuts to head there as well. 

As with posts you make on your HOME page, you can tag other members with the ‘@’ symbol in the forums so they can receive a notification that you mentioned them. For example, to tag ‘member123’ in a forum post you would type ‘@member123’. 

We encourage members to share relevant news stories, journal articles, and blog posts with the community. We do ask that members include a reference/link back to the source.  Personal blogs can be linked when labeled appropriately. They can be shared in the forum with the subject “External Blog Post: Your title here”. PatientsLikeMe is not responsible for the content of linked blogs.  

PatientsLikeMe members are not permitted to solicit members or promote for personal gain, including for any medical research studies or projects. You can read more about our Policy on linking and solicitation here.  

Learn more: Blocking private messages and hiding posts on the main website 

Can I modify or delete my forum posts? 

Questions? Contact us.