Does PatientsLikeMe sell my information?

Yes, we do. We create partnerships between you, our patients, and the companies that are developing products to help you. To do that, we take the information you entrust to us and sell it to the companies that can use that data to improve or understand products or the disease market. The personally identifiable information you share upon joining the site (like your name or contact information) is considered restricted and therefore not shared with partners. The data and text you enter in and around the shared parts of the site (e.g., on your profile, in the forum, symptom or treatment reports) may be shared or sold in aggregate to partners.

We also provide a voluntary opt-in service to allow partners to directly communicate with patient members through our system.

To learn more, see how we make money or read details on what is shared and sold in our Privacy Policy.

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