The database of symptoms, side effects, hospitalizations and treatments we use on PatientsLikeMe has been mostly created by patients. We try to balance the unique patient voice with the ease with which patients can share similar experiences. In order to do this, we organize and code existing entries and try to consolidate very similar or duplicate entries and send you a message to let you know we’ve made a change on your profile. Some reasons we might consolidate entries are: if it is misspelled, if it already exists in our database, or is the same as an existing entry but perhaps worded slightly different (i.e., Pain in toes and Toes hurt).
We welcome any feedback and encourage you to review your profile if you do get a message letting you know we changed something.